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The mission of the Alzheimer’s Foundation of America (AFA) is to provide support, services and education to individuals, families and caregivers affected by Alzheimer’s disease and related dementias nationwide, and fund research for better treatment and a cure.

AFA offers professional trainings and educational workshops. AFA’s Continuing Education Workshops offer continuing education (CE) credits to licensed social workers, certified case managers, and other professionals across the US. To help individuals take a proactive approach to brain health, AFA has National Memory Screening Program which provides, free, confidential memory screenings at sites across the country.

AFA operates National Toll-Free Helpline (866-232-8484), staffed entirely by licensed social workers, which provides support and assistance to callers, as well as connect them with resources in their area, no matter where in the United States they live.

The Alzheimer’s & related Dementias Education & Referral (ADEAR) Center is a service of the National Institute on Aging at the National Institutes of Health. Call 800-438-4380/ TTY: 800-222-4225 or email This email address is being protected from spambots. You need JavaScript enabled to view it. to talk with an information specialist.

Find resources on Alzheimer’s and related dementias for health care providers, community and public health workers, and researchers. Find guidance for discussing Alzheimer’s disease and related dementias clinical research studies with your patients, plus resources to help them learn more about participation.

Your local Area Agency on Aging will put you into contact with the programs and services in your area. This Locator Tool allows you to select your county from the drop-down menu to find contact information for the Area Agency on Aging serving your local area.

FTD is frequently misdiagnosed as Alzheimer’s, depression, Parkinson’s disease, or a psychiatric condition. On average, it currently takes 3.6 years to get an accurate diagnosis. AFTD provides resources on diagnosing FTD, treating FTD, an e-newsletter for health professionals, and 25+ recorded webinars provide training presented by experts in the FTD field. Contact AFTD's HelpLine at 1-866-507-7222 or email This email address is being protected from spambots. You need JavaScript enabled to view it..

Benjamin Rose Institute on Aging is an over 110-year old Cleveland-based nonprofit organization whose mission is to support caregivers and empower all people to age well through research, consumer-responsive services and client advocacy.

Through over two decades of rigorous research, they have developed two evidence-based programs:

BRI Care Consultation™
A care-coaching program that helps professionals deliver cost-effective assistance and support to individuals with chronic health conditions and family caregivers by telephone and email.

SHARE for Dementia
A care-planning program that provides professionals with the tools they need to help families facing an early-stage dementia diagnosis.

The Best Practice Caregiving, a free online database of vetted, proven dementia caregiving programs. Organizations that serve family caregivers can use this searchable, interactive, data-rich resource to compare and select from more than 40 evidence-based programs across the U.S.

The mission of the CJD Foundation is to support families affected by Prion Disease, raise awareness, and support medical education and research. Family support including HelpLine, referrals, support groups, and education for families, caregivers, and medical professionals.

Resources are available for the following professions: Funeral Professionals, Hospice Professionals, Infection Control, and Medical Education.

TOLL-FREE HELPLINE: 1-800-659-1991

Dementia Society of America® (DSA) is the nation’s leading volunteer-driven all-Dementias awareness organization. DSA provides an information hotline (1-800-DEMENTIA), many online resources, and an easy-to-use, web-based locator, which can help families and individuals find valuable support near to them.

Additional resources and programs include: Aware and Share Cards to use when in the community, The Big Umbrella: A guide available to distribute to clients or leave in the waiting room, and Operation KeepSafe. DSA offers no-cost / low-cost, basic medical ID kits to anyone living with Minor Cognitive Impairment or Dementia and their carers throughout the US/Canada, regardless of their ability to pay.

ACT on Alzheimer’s and partners strive to increase the capacity of dental providers to care for the growing number of older adults living with dementia and to support their care partners. You will find training packages and resources for the entire dental team (DDS, DH, DT, DA and administrative staff). A downloadable evidence-based practice toolkit for providing dementia friendly dental care is provided.

This toolkit is intended to recognize and respond to stigma and discrimination. It has been designed by people living with dementia to help others – including other people living with dementia, the people who support them, and those who do research – to address the challenges of stigma and discrimination.

The Alzheimer's Association partnered with government and professional organizations to develop several physician guidelines and recommendations that can help care for your patients with dementia.

The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances.

Resources available are: LBD Diagnostic Symptoms Checklist, Emergency Room Treatment of Psychosis, Research News, Studies Seeking LBD Participants, and the option to order free patient handouts.

Use these ACT on Alzheimer's® provider practice tools and resources to support patients and clients who have memory concerns and their care partners. These best practice tools incorporate the expertise of clinical and community-based service providers.

The list of tools include: Electronic Medical Record (EMR) Decision Support Tool, Care Coordination Practice Tool, and After a Diagnosis resources.

A variety of resources are available including:

-Communication cards: The Communication Cards depict a wide range of daily activities and situations and can be used to prompt discussion, assist with directions, or clarify needs, etc.

- Interpreter Cards: Multilingual wallet-sized cards to assist people with requesting interpreter services.

The Administration on Aging/ Administration for Community Living (AoA/ACL) funds the National Alzheimer’s and Dementia Resource Center (NADRC). The goals of the NADRC include, but are not limited to, the provision of expert technical assistance to AoA/ACL and its grantees, as well as making program information and resources available to individuals and organizations outside the Alzheimer’s grantee community.

The expertise of the Resource Center team is broad, with combined experience and knowledge related to a variety of topics including, dementia-capable systems, supportive services for people with dementia and caregivers, evidence-based caregiver interventions, behavioral interventions for people with dementia, data collection and reporting, and program evaluation.

Welcome to NIA's publications ordering site! Here you can order and download free publications about healthy aging and age-related diseases and conditions, including Alzheimer’s disease and related dementias.

You can order and download online, call the NIA Information Center at 800-222-2225, or email This email address is being protected from spambots. You need JavaScript enabled to view it. for help in English and Spanish.

This extraordinary how-to manual provides essential information about living with dementia from 48 people living with dementia, care partners, and leading dementia specialists. The practical, helpful information, grounded in science, is presented in a user-friendly format.

The Penn Memory Center is a single, unified Penn Medicine source for those age 65 and older seeking evaluation, diagnosis, treatment, information, and research opportunities related to symptoms of progressive memory loss, and accompanying changes in thinking, communication and personality.

Penn Memory Center offers state-of-the-science diagnosis, treatment and research, focusing on individuals with Alzheimer’s disease, mild cognitive impairment (MCI) and other age-related progressive memory disorders.

The Pennsylvania Department of Aging works to ensure that older adults across Pennsylvania have access to quality services and supports that help them age and live well.

The department provides a wide array of services and programs intended to help older Pennsylvanians live and thrive in their homes and communities for as long as possible. These services include home-delivered and congregate meals, caregiver support, health and wellness services, personal assistance, senior community centers, Medicare enrollment counseling, transportation, job training, elder abuse prevention, PACE prescription assistance and more.

The Pennsylvania Department of Health offers resources highlighting the importance and value of early detection and diagnosis, awareness of knowing and analyzing signs and symptoms, best practices for delivering best care by ensuring cultural competency and addressing racial and ethnic disparities and inequities.

The PA Link to Aging and Disability Resources is PA's effort designed to help persons with disabilities and seniors find information that will connect them to supports and services in their community. There is no charge for information and assistance provided by any PA Link or PA Link partner agency.

Call the PA Link to Aging and Disability Resource Center Toll-Free Helpline: 1-800-753-8827